As a parent of a child that needs special care, lying awake at night calculating impossibilities isn’t a new thing. Your child needs skilled nursing care—close monitoring, medications, equipment management—but you also need to work. Not just for the income, […]
Your child spends most days with adults—therapists, nurses, doctors, you—but almost no time with other children. They’re medically stable and receiving excellent clinical care, but they’re also profoundly lonely in ways that break your heart when you really allow yourself […]
The first day of school should be exciting, but as parents of children with special needs, worry can frequently accompany this excitement. Our child has complex medical needs—medications that must be administered precisely on schedule, equipment that requires monitoring, and […]