Your child can’t tell you they’re scared about their upcoming surgery. They don’t have words for the frustration of watching other children run and play while their bodies won’t cooperate. They can’t explain the confusion of why they spend so […]
You still remember the day you received your child’s diagnosis. You’re relieved that there’s a name for and a plan to treat your child’s symptoms. However, hearing healthcare providers use terms like “significant delays”, “ongoing medical needs,” and “complex care […]
It’s been three years since you slept a whole night. Your friends stopped inviting you to things because you always cancel at the last minute when your child has a medical crisis. Your partner is sleeping in another room because […]
Your child’s medical chart has diagnoses, treatment plans, and specialist recommendations. You know their medication schedule by heart, can recite their most recent vitals from memory, and have become an expert in managing their complex medical equipment. But last week, […]
As parents, we know the feeling of watching our child struggle with a medical condition, but when the child has complex medical needs requiring skilled nursing care, the weight of responsibility can feel overwhelming. We face decisions and concerns that […]
That moment when the transportation van pulls up to your driveway to pick up your child, as parents, we feel so many emotions. On one hand, where it gives relief that they’re on time, it also gives us anxiety about […]
Every morning as you’re getting ready for work, some familiar concerns cross your mind: How will my child get to their medical daycare safely today? What if there’s an emergency during the ride or my child becomes distressed without me […]
As parents, we want our child to grow, learn, and thrive alongside their peers, but when our child has complex medical needs, we often wonder: Are they missing out on important developmental experiences because of their health requirements? Will managing […]
Every time you walk into that medical room, you bring months of observations, concerns, questions, and hopes for better health and improved quality of life for your child. You know your child’s patterns, triggers, what helps them feel safe, and […]
After the gentle rhythm of summer, the return to school can feel like a storm of change. For many parents, back-to-school brings excitement and a touch of worry. For those of us raising children with special needs, those worries take […]