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As parents of Children with Special Needs, we know our child needs more than what... -
You’ve heard the acronym PPEC at least a dozen times in the past few weeks,... -
The diagnosis arrived like an earthquake, cutting your vision of the future into before and... -
You’ve just been told your child needs ongoing skilled nursing care at home after discharge... -
The night before your child’s first day at PPEC, sleep doesn’t come easily. You’ve checked... -
The first few weeks after your child’s tracheostomy placement, silence becomes your new reality. The... -
You’ve made the same call seventeen times this month. Each conversation starts with cautious optimism—maybe... -
You hear whispers start even before you reach the checkout line. A stranger stares at... -
The phone calls start before 7 AM. Your medically fragile child needs to be at... -
Three in the morning. The house is quiet except for the steady click of a... -
The playground is full of children running, climbing, and chasing each other.. Not because they... -
As a parent of a child that needs special care, lying awake at night calculating... -
Your child spends most days with adults—therapists, nurses, doctors, you—but almost no time with other... -
The first day of school should be exciting, but as parents of children with special... -
When your child was diagnosed with complex medical needs, you probably spent countless hours researching... -
You see your child sitting alone during family gatherings, unable to join the games that... -
The alarm on the feeding pump goes off for the third time tonight, and you... -
Watching your child struggle to express a simple need—wanting a drink, asking for help, trying... -
Your child can’t tell you they’re scared about their upcoming surgery. They don’t have words... -
You still remember the day you received your child’s diagnosis. You’re relieved that there’s a... -
It’s been three years since you slept a whole night. Your friends stopped inviting you... -
Your child’s medical chart has diagnoses, treatment plans, and specialist recommendations. You know their medication... -
You check on your child for the fourth time tonight, even though the monitor shows... -
Your child has good therapists. The nursing care is competent. The educational program tries its... -
There’s a distinct “before and after” that families describe when talking about specialized pediatric care.... -
As parents, we know the feeling of watching our child struggle with a medical condition,... -
That moment when the transportation van pulls up to your driveway to pick up your... -
Every morning as you’re getting ready for work, some familiar concerns cross your mind: How... -
As parents, we want our child to grow, learn, and thrive alongside their peers, but... -
Every time you walk into that medical room, you bring months of observations, concerns, questions,... -
After the gentle rhythm of summer, the return to school can feel like a storm... -
When your child tilts their head to watch TV or holds books unusually close to... -
Finding quality childcare is challenging for any parent, but the search becomes overwhelming when your...
