As a parent of a child that needs special care, lying awake at night calculating...
Your child spends most days with adults—therapists, nurses, doctors, you—but almost no time with other...
The first day of school should be exciting, but as parents of children with special...
When your child was diagnosed with complex medical needs, you probably spent countless hours researching...
You see your child sitting alone during family gatherings, unable to join the games that...
The alarm on the feeding pump goes off for the third time tonight, and you...
Watching your child struggle to express a simple need—wanting a drink, asking for help, trying...
Your child can’t tell you they’re scared about their upcoming surgery. They don’t have words...
You still remember the day you received your child’s diagnosis. You’re relieved that there’s a...
It’s been three years since you slept a whole night. Your friends stopped inviting you...
Your child’s medical chart has diagnoses, treatment plans, and specialist recommendations. You know their medication...
You check on your child for the fourth time tonight, even though the monitor shows...
Your child has good therapists. The nursing care is competent. The educational program tries its...
There’s a distinct “before and after” that families describe when talking about specialized pediatric care....
As parents, we know the feeling of watching our child struggle with a medical condition,...
That moment when the transportation van pulls up to your driveway to pick up your...
Every morning as you’re getting ready for work, some familiar concerns cross your mind: How...
As parents, we want our child to grow, learn, and thrive alongside their peers, but...
Every time you walk into that medical room, you bring months of observations, concerns, questions,...
After the gentle rhythm of summer, the return to school can feel like a storm...
When your child tilts their head to watch TV or holds books unusually close to...
Finding quality childcare is challenging for any parent, but the search becomes overwhelming when your...
“I wish there were a place that could offer everything my child needs.” Sound familiar?...
As a parent, you naturally want to be prepared for any situation involving your child’s...
When your child requires complex medical care involving surgically implanted medical devices such as gastrostomy...
When your child is born with or develops a craniofacial condition, the journey ahead can...
Summer brings endless opportunities for outdoor fun with playground adventures, family picnics, swimming lessons, and...
When the genetics counselor first said the words “rare genetic disorder,” you probably felt like...
Think of this as a parent: You’re at your child’s soccer game when suddenly a...
As parents of a child with special needs, we already have our plates overflowing with...
In those phases when your child is finally settled and the house is peaceful, as...
If you’re a parent of a special needs child, you have probably discovered that even...- When summer arrives and pool invitations start coming in, parents often feel anxious about water...
